As many know, I am the founder of Chelsea's Hope Lafora Children Research Fund but my most important role and privilege was being Chelsea's mom. October 1st, also deemed Lafora Awareness Day, is Chelsea's birthday and she would have been 34 years old. She left this world much too soon in December 2016 at the age of 26.
I began Chelsea's Hope 15 years ago as a means to connect Lafora families for support, to raise awareness and to fund the research for a cure. We have succeeded on these points and I am so proud to share that this past week the FDA approved for Chelsea's Hope to begin the first ever patient clinical trials. This is HUGE news!
Please join me by helping fund this historic and life changing moment in Chelsea's Hope history. The families of Chelsea's Hope are desperate to save the lives of their children.
So many of you have donated to our research pleas over all these years and we are forever grateful! You and your kind generosity have made a huge difference to our success. We have now reached this pivitol juncture of clinical trials and are on the cusp of treatment that could change the course of life for Lafora patients in the most positive way.
Please donate, join our team, and/or share our campaign to make history by eradicating Lafora disease and save the lives of our children!
With gratitude and always maintaining HOPE,
Linda
