I am raising money for the safety study in honor of my daughter Emine Malaj who has lafora disease.
Read her story here
I am excited that the Safety Study has been approved and I am hoping to apply so Emi has the chance to be one of the 10 patients that will have the opportunity to trial the ASO therapy. It is a long journey from the UK to Dallas, Texas, USA but that does not concern me. My main priority is to slow down the progression and stop death in my child.
Please help us fund this safety study, even if it is the cost of a coffee or tonight's dinner, please donate here to Chelsea’s Hope so they can keep going with helping our children.
Many Thanks
Fatos & Liliana Malaj
