Fully fund the ION283 Safety Study

Fund treatment for Lafora disease!

$182,361

39% of $460,000 goal

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Fatos Malaj

Fundraiser since Apr 2025

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Fatos Malaj's Story

I am raising money for the safety study in honor of my daughter Emine Malaj, who has Lafora disease. 

Read her story here.

It is a long journey from the UK to Dallas, Texas, USA, but that does not concern me. My main priority is to slow down the disease progression and prevent my child's death.

Emi in hospital

Please help us fund this safety study, even if it is the cost of a coffee, please donate here to Chelsea’s Hope so they can keep going with helping our children.

Many Thanks

Story

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Chelsea's Hope Lafora Children Research Fund

A 501(c)(3) Public Charity

EIN 27-1008382

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