Will You Join Us to Pave the Way for More APBD Research?

APBD Manifests During the Prime of Life and Has No Treatment Options
APBD is an ultra-rare, inherited disorder of metabolism that devastates the nervous system. It gives no indication of its presence in infancy or childhood, but it strikes adults when they're in the prime of life -- as young as 35. Most often, sufferers are told they have MS, ALS, peripheral neuropathy, and other severe neurodegenerative ailments which have similar symptoms. At the current time, there is no treatment or cure.

The APBD Tour de Friends is Raising Funds For More Research
In 1991, a significant breakthrough revealed the genetic origins of APBD, driving innovative and determined research efforts that have greatly deepened our understanding of the disease. With promising progress, we're inching closer to the treatments that we desperately seek.

Since we started partnering with UPenn’s Million Dollar Bike Ride program in 2016, our researchers at Columbia University, Duke University Medical Center, UT Southwestern Medical Center, University of Florida, Newcastle University, and Hadassah Medical Organization have collectively received over $700,000 in pilot research grants.

On June 8, the APBD Research Foundation is participating in the 2024 Million Dollar Bike Ride – once again, bringing the APBD community together to accelerate research.

Please Support Our Efforts to Advance APBD Research!

HAVE QUESTIONS? Contact Anesa at anesa@apbdrf.org.

Thank you for partnering with us!

Harriet Saxe, Co-Captain, Team APBD Tour de Friends
Anesa Kajtazovic, Co-Captain, Team APBD Tour de Friends

PS: Be as generous as you can with your support!

To learn more about APBD and the Foundation’s work, visit apbdrf.org.

* Donations made towards this campaign by you and our Board will be split between Penn Medicine's Orphan Disease Center (ODC) research grants for APBD (80%) and the APBD Research Foundation’s patient advocacy and research programs (20%).

Million Dollar Bike Ride 2024

Team Leaderboard

Team Members