The Raymond A. Wood Foundation is a parent-led, rare disease patient advocacy organization dedicated to improving the lives of those struggling with the effects of hypothalamic brain tumors.

As a part of our mission, we double work to support those struggling with both the immediate and long-term effects of these tumors.

Every dollar you donate will go twice as far in fueling the following critical programs.

Lead the development of an at-home sodium meter that will improve care management for critical patients that suffer from diabetes insipidus (the brain's inability to manage the body's fluid balance, which can result in abnormal blood sodium).

Provide handheld blood analyzers to critical pediatric patients to keep them out of labs and hospitals, allowing them to manage their condition at home.

Build a brain tumor biobank to accelerate research that will improve outcomes for those with newly diagnosed or recurrent tumors.

Provide ongoing education and support to survivors and caregivers.

Help us ROAR! Join us in compounding our impact on the lives of rare brain tumor survivors. Hear our collective roars resound.

Roar for Rare

Roar with Us!

Team Members