Join us at the inaugural Roar 2026: CASK Conference! Individuals with CASK gene disorders, their families, researchers, and healthcare professionals will come together to discuss the latest advancements, research, and community support.

This first-of-its kind event will take place in Houston, Texas, Tuesday, November 10th through the evening of Thursday, November 12. Our Scientific Advisory Board will meet in person, and family research opportunities will be offered so we can all participate in the science. We’ll officially kick off the conference with a Welcome Reception that evening.

We'll follow that with two days of sessions -- researchers, scientists, clinicians and families will all share with each other. We’ll have a fun Awards Dinner Wednesday night, and the conference will conclude with a Dinner and Dance Party on Thursday evening. We hope you can make it to support and celebrate the progress we’re making TOGETHER!

We are happy to offer Camp ROAR!, licensed care for our loved-ones of all ages that are affected by CASK and other special needs, as well as their siblings ages 17 and under.

We understand hotel, childcare and travel can be a financial burden. To help assist with financial barriers, we have compiled a list of potential resources for assistance with travel expenses to the CASK Conference. Additionally, we are offering a fundraising/sponsorship incentive to help cover ticket costs for CASK families.

Find more information at https://www.projectcask.org/2026-cask-conference

Registration - Roar 2026: CASK Conference

Houston, Texas USA Nov. 10 - Nov. 13