Renewing Hope: Your Continued Impact for TBRS

Your past donation propelled vital research and brought hope to our community. You brought us closer to finding treatment options. You supported our families and made them feel less alone in their rare disease journey. 

Your renewed support will enable us to:

Launch TBRS Centers of Excellence for patient care
Fuel groundbreaking research to identify treatments
Expand our family support programming

Every dollar you give directly impacts the lives of those living with TBRS, offering them hope and a brighter future.

Thank you for providing crucial resources that empower families with the knowledge and connections they need to advocate for their loved ones. You have helped us expand our Collaborative Research Network to include over 200 scientists and clinicians, all committed to developing effective treatments for TBRS. Let's keep the momentum going!