Hope Needs a Home: Help Us Build It.

Creating the first TBRS Center of Excellence Pilot Program

Created 1 month ago

TBRS Virtual Scientific Meeting, 2026

A virtual scientific meeting, presenting new discoveries in the TBRS field, in advance of the 2026 in person TBRS Summit

Created 1 month ago

2026 TBRS Summit Fund Donations

Help make the TBRS Summit accessible to everybody

Created 2 months ago

Chili for a Cure: Unite for Lucas

Tin Roof BBQ Chili Cook-Off to benefit the TBRS Community

Created 3 months ago

Dr. Shaine Morris: Aortopathies and Genetic Overgrowth Syndromes

Overgrowth Syndromes Alliance (OSA) Speaker Series

Created 3 months ago

2026 TBRS Summit Sponsorships

Created 5 months ago

TBRS Exercise Challenge, 2025

Movement with Meaning: Sign up to participate below!

Created 9 months ago

TBRS Exercise Challenge 2024

Movement with Meaning: Sign up to participate below!

Created 1 year ago

End of Year Appeal

All donations over $200 are eligible for a custom made, sterling silver, TBRS Charm, engraved with your loved one's name. (See photo below)

Created 1 year ago