Your compassion and commitment to making a difference in the lives of people with TBRS give us hope. Today, we bring to your attention a matter of great urgency - we need to go full speed ahead with our plan to support families NOW and identify treatment options to improve their future. We have the right people and tools to get there, and with your support, we can succeed faster.

The TBRS Community seeks to raise $50,000 by December 31st to accelerate our progress toward identifying treatments while continuing to provide support to all families affected by TBRS.

Your support is more than a donation, it is an investment in the lives of children and adults struggling with TBRS.

TBRS Charm (engraved)

All End-of-Year donations of $200 and over are eligible for this one-of-a-kind, custom-designed, sterling silver, TBRS Charm. We will engrave it with your loved one's name or initials. Add it to your favorite charm bracelet or a silver chain necklace. The charm will be shipped in February, just in time for Valentine's Day. Shipping charges will apply to orders outside of the United States.

End of Year Appeal

All donations over $200 are eligible for a custom made, sterling silver, TBRS Charm, engraved with your loved one's name. (See photo below)