Be a hero for TBRS! Donate or become a participant by joining the TBRS Exercise Challenge.

Your support will help us expand the TBRS Patient Registry and get valuable patient data into the hands of our scientists and clinicians. By doing so, clinicians around the world will finally understand the symptoms associated with TBRS, create appropriate surveillance and treatment guidelines, and move the needle forward on developing treatment options for people affected by TBRS. We will also be able to identify more patients with TBRS, and provide proper support and care.

The TBRS Challenge is a “Move-A-Thon” that raises money for TBRS while promoting a healthy lifestyle. Show your support - donate to your loved one’s team, or to the general cause. Want to do even more? Become a participant! Create your own team and promise to exercise for the month of April. Ask your friends and family to pledge their support by donating. Participants can choose what type of exercise they will do.

This fundraiser was thought up by our very own, Ashley Hatton! Thanks Ashley. You're a true inspiration! Have questions? We are here to help. Email kit@tbrsyndrome.org

TBRS Exercise Challenge 2024

Movement with Meaning: Sign up to participate below!

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Team Members