Our Mission is clear: to transform the lives of people with Rett syndrome (and their loved ones) by funding high-impact research to accelerate cures.

Rett syndrome is a serious, lifelong neurological disorder. Imagine the symptoms of autism, cerebral palsy, Parkinson’s disease, epilepsy, and anxiety disorder… all in one little child.

The symptoms are diagnosed primarily in girls and typically appear in toddlerhood. Many children with Rett cannot speak, walk, or use their hands. Breathing problems, feeding tubes, seizures, anxiety, and gastrointestinal and orthopedic issues are very common.

Despite the debilitating nature of Rett, our children are so much more than a laundry list of symptoms. Their beauty and their strength inspire and motivate us.

🌊 Your Impact:

The unwavering dedication and perseverance of the Rett community, combined with the love we have for our children, empower us to fulfill our vision of a world where genetic medicine cures are no longer science fiction but a reality.

Help us achieve our goal of raising $100,000 this #GivingTuesday.

💥 How You Can Help:

1️⃣ Donate to this campaign!

2️⃣ Create your own Page in seconds:

3️⃣ Share with your Community!

4️⃣ Download our Toolkit for Resources

Follow our social channels to stay up to date!
📘 Facebook | 📸 Instagram | 📺 YouTube

Check back here often for updates!

Everything helps: Every single penny. Every single share. It all adds up. It all makes a difference.

NOTE: Contact Tim to discuss larger donations, donating via check, stock, or cryptocurrency, organizing a fundraiser, company matching, corporate sponsorship, or any other form of fundraising.

🧬 The Genetic Medicine Revolution:

Rare diseases will NOT cure themselves. Derisking research and development of cutting-edge technologies fall on patient advocacy groups and nonprofits (like us). We must feed the genetic medicine pipeline and work with biopharma companies to transition programs to advance them through clinical trials and production.

This is why we started the Roadmap to Cures 2.0 initiative. Watch this video to learn more:

We hosted a webinar earlier this year that you can watch here if you're interested!

Striking while the iron is hot is crucial to our success; there has never been more urgency. Advances in genetic medicines are happening at lightning speed, and Rett could be positioned to benefit significantly from that momentum. We want to be at the front of the line.

Cure Rett Syndrome for #GivingTuesday

We'll work tirelessly to ensure every single donation you make will advance our quest for Rett syndrome cures.

Team Members