Step Up for the TBRS Exercise Challenge

When Tatton Brown Rahman Syndrome (TBRS) was first identified in 2014, families had nowhere to turn—no research, no doctors who understood, no community. But that changed when families came together.

Because of this powerful community, we’ve built a global support network, funded research, and uncovered potentially life-saving medical information. Now, we need to take the next step—getting this critical knowledge into the hands of families and clinicians who need it.

Your Support Will Help Us:

Launch the TBRS Clinical Education Series, providing doctors and families with the latest TBRS research.
Develop and distribute surveillance and treatment guidelines, ensuring timely, proper medical care.
Strengthen the TBRS Community, expanding research, access to clinical information, and family support.

What is the TBRS Exercise Challenge?

The TBRS Exercise Challenge is a "Move-A-Thon" raising funds while promoting an active lifestyle. In April, participants pledge to exercise, spread awareness, and raise money to support TBRS families.

Two Ways to Get Involved:

Donate to a Participant
Support a dedicated fundraiser by donating to their challenge. Every dollar helps bring life-saving clinical knowledge to families and doctors.
Sign Up as a Participant
Want to do more? Join the challenge! Set a movement goal, create your own fundraising page, and rally friends and family to donate.

We’ve made it easy to fundraise and will send you our Peer-to-Peer Fundraiser Toolkit, filled with sample messages, social media graphics, and tips to help you succeed. Click "Fundraise" to join our team.

Interested in Sponsoring the TBRS Exercise Challenge?

We offer sponsorship opportunities for businesses and individuals who want to support the TBRS Community. Contact jill@tbrsyndrome.org to learn more.

Together, we are getting potentially life-saving TBRS clinical knowledge into the hands of families and doctors. Join us today and be part of this movement for change!

TBRS Exercise Challenge, 2025

Movement with Meaning: Sign up to participate below!

Team Leaderboard

Team Members