Titus Tough: Join the Fight to Cure MPS1

Titus Barrett-Weber is not just another statistic. He is a son, a brother, and a light in the lives of everyone who knows him. Diagnosed with MPS1 Hurler Syndrome, a progressive disorder that affects multiple organs and causes severe physical challenges and developmental delays, Titus’s journey has been anything but easy. At just 5 years old, he has faced chemo, a bone marrow transplant, lengthy hospital stays, countless therapies, and numerous medical challenges.

Despite the pain, Titus remains resilient. But without a cure, MPS1 will continue to steal precious time from his childhood. For Titus and every child like him, every day matters in the fight against this disease.

What is MPS1 Hurler Syndrome?

MPS1 Hurler Syndrome is a rare genetic disorder caused by the body’s inability to break down specific sugar molecules, leading to a dangerous buildup in organs and tissues. This buildup results in severe physical and neurological symptoms, affecting a child’s ability to grow and develop properly. The impact is devastating, and without proper treatment, the disease progresses rapidly.

There is Hope

Thanks to ongoing research and treatment advancements, we are moving closer to a cure every day. Your support will help accelerate this progress and provide families like Titus’s with the resources they need to give their children the best possible care and treatment.

We Need Your Help Now!

This is a cry for help. MPS1 Hurler Syndrome is relentless, but so is the fight for a cure. Your donation can fuel groundbreaking research, ignite a movement, and bring hope to families like Titus’s who are in desperate need.Together, we can create a future where MPS1 is no longer a life sentence.

Donate today and be part of the solution. Every dollar makes a difference. Help us raise $1,000,000 for The Kennedy Ladd Foundation to fund life-saving research and give hope to children like Titus.

How You Can Help

1. Donate Now: Every donation counts. Donate Here

2. Share Titus’s Story: Help us reach more people. Share Titus’s story on social media with the hashtag #HopeForTitus #TitusTough and encourage others to give.

3. Ask Your Friends: Ask 10 of your friends to donate $10. A small contribution from many can create a big change.

4. Join Titus’s Team: Fundraise with Us!

Titus needs a crew, and we’re calling on you to suit up and join the mission! By starting your own fundraiser under Titus's banner, you’re not just raising funds—you’re becoming part of Titus’s Team, a community dedicated to spreading awareness and fighting to cure MPS1.

Invite your friends, family, and neighbors to rally behind you. Together, we'll move mountains and take huge strides toward curing MPS1. The more people we have on the team, the louder our voices will echo, and the greater our impact will be.

How to Get Started

Sign Up: Create your own fundraiser as part of Titus’s Team.
Rally Your Community: Invite friends, family, and neighbors to join the fight and spread the word.
Watch the Impact: Together, we’ll make a difference—one story and one donation at a time.

Let’s do this—because every superhero needs a super team! 💪

Titus is counting on us. Let’s fight for his future and the future of every child battling MPS1.

Titus Tough: Help Us Cure MPS1 Hurler Syndrome

By Kennedy Ladd Foundation

Titus Tough: Help Us Cure MPS1 Hurler Syndrome

Help us CURE MPS1

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