Advancing Access for Medically Underrepresented Children

At Melanin Children Matter Inc., we are on a mission to uncover the hidden mechanisms of one of the rarest and most devastating childhood conditions: SPTLC2-related pediatric ALS. This rapidly progressive neurodegenerative disease robs children of muscle control, independence, and ultimately, their lives.

Through cutting-edge research, we are working to:

🔬 Map the broken pathways in the disease using advanced proteomics.

🧬 Identify disease fingerprints in cell lipids to improve early detection and treatment design.

🧑🏾‍⚕️ Model the disease in motor neurons derived from patient stem cells to discover how mutations cause damage and test ways to protect children.

Your support makes this work possible. Every dollar funds essential research tools—from creating patient-specific cell lines to providing critical reagents and sequencing. Together, we can:

• Reveal the root causes of this devastating disease.

• Provide tools for scientists worldwide to accelerate treatments.

• Give hope to families who have lost, or are fighting to save, their children.

💛 Join us in advancing access, equity, and lifesaving research for medically underrepresented children.

Donate today to help stop pediatric ALS before it takes another child.