Maddie’s Spark Foundation Inc is a 501(c)(3) nonprofit dedicated to raising awareness and funding research for VLCAD deficiency and related long-chain fatty acid oxidation disorders (LC-FAOD).

Inspired by Maddie’s bright, resilient spirit, we are working to accelerate research, advance treatments, and support families navigating this journey because no child should have to fight this hard just to have the energy to live, grow, and thrive.

VLCAD is a rare, lifelong condition that requires constant management. Children often face frequent hospitalizations, ongoing medical care, and an uncertain future. Current treatments help but they are not a cure.

That’s why this campaign matters. You can be part of the progress.

Donate to support critical research, or take it one step further by creating your own fundraising page and rallying your community. Every fundraiser started, every dollar raised, and every story shared helps move this mission forward.

Your support helps fund research, strengthen medical partnerships, raise awareness for earlier diagnosis, and provide resources to families who need it most.

Together, we can move beyond survival and toward a future where every child with VLCAD can truly thrive.

👉 Join the movement. Start a fundraiser. Be the spark for a cure.

Be the Spark for VLCAD Research

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