The Ependymoma Research Foundation is run efficiently with low overhead and has an entirely volunteer staff. No donations received are used for overhead to ensure that what is raised is actually applied to research projects.

With your help we can fund a new research project with $50,000.

We are a, volunteer-run, nonprofit organization. The organization was started by Jeff and Samarrah Clayman. Jeff Clayman, MD, FACC, Clinical Assistant Professor of Medicine at Tufts Medical School is a Cardiologist at the Lahey Clinic, and Samarrah is a Social Worker and Writer. In addition, we have a professional board of directors with robust experience in medicine, research, fundraising, law and nonprofit administration.

The Ependymoma Research Foundation recognizes that ependymoma has been a chronically underfunded area and that more basic research is badly needed in this area. Much of recent clinical research has focused on repurposing existing anti neoplastic drugs, an approach that has largely been met with failure. For this reason, the Ependymoma Research foundation prioritizes upstream research that would be otherwise overlooked by the NIH R01 grant process that may either provide direct mechanistic insight into ependymoma or provide the preclinical data necessary to move a therapeutic agent or idea out of the lab and into a Phase I clinical trial or to have adequate scientific rationale to actually qualify for R01 NIH grant funding on its own.

New Research Initiative - Summer 2024

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