Maddie’s Spark Foundation is a 501(c)(3) nonprofit corporation dedicated to raising awareness and funding research for VLCAD deficiency and related long chain fatty acid oxidation disorders (LC-FAOD). Inspired by Maddie’s bright, resilient, and unstoppable spirit, we turn personal experience into purpose by supporting research, advancing treatments, and empowering families navigating LC-FAOD.

This organization was created to change the future for children living with VLCAD. Because no child should have to fight this hard just to have the energy to live, grow, and thrive.

Maddie is the heart of our mission. Her strength fuels our advocacy. Her journey drives our commitment to research, awareness, and hope. We believe every spark of hope can fuel real progress. Until there is a cure, we will continue working toward a future where children with VLCAD and LC-FAOD can live full lives with fewer hospitalizations, less uncertainty, better treatments, and a far greater quality of life.

2026 Spark-ghetti Dinner

Benefiting VLCAD Deficiency Research at UPMC Children's Hospital of Pittsburgh