🧬 Help Rewrite the Future for Children with SPG4

The Lilly and Blair Foundation is raising critical funds to advance gene therapy and treatment options for children living with de novo SPG4—a rare and progressive neurological condition. Your support today fuels science, hope, and a path toward a cure.

Double Your Donation – Matched Up to $25,000

Last year, a matching gift made at our golf tournament sparked something powerful. This year, that spark has grown into a movement.

Families from across the country, each raising a child with de novo SPG4, have come together to build a $25,000 match. They’ve seen the science. They know the urgency. And they’re determined to keep this work moving forward.

All donations made by May 30 at 8 PM will be matched, dollar-for-dollar—to accelerate progress and protect momentum when it matters most.

Click the Donate button above to give online or text “MATCH4SPG4” to 53-555

Your donation counts toward our goal—track progress in real time above!

Browse & Bid in the Silent Auction, sponsored by ECRS

Check out our incredible lineup of silent auction items generously donated by local businesses and supporters. From wine tastings to weekend getaways, every bid supports our mission—but please note: bids do not count toward the donation match. Scroll to the very top and click on "Auction" to view items.

Bidding closes on Friday, May 30 at 8 pm ET and payment is due after the auction closes (on-site or by follow-up email)

Winners attending the event can pay and pick up items in person. Others can check out directly on the auction site, and we’ll either mail your item or coordinate pickup if noted in the item description. It’s quick, secure, and open to everyone.

However You Give, Thank You

Whether you're placing a bid or making a matched donation—or both—your generosity helps rewrite the future for children with SPG4. We are incredibly grateful for your support.

FAQs

Q: Can I participate in both the auction and donation match?
Yes! Donations made through the Donate button will be matched up to $25,000. Bids placed in the silent auction support our mission too, but they do not count toward the match.

Q: Do I need to enter my credit card to bid?
No. You can place bids without entering payment information upfront. If you’re a winning bidder, you’ll receive payment instructions after the auction ends—or you may pay on-site if you're attending the event.

Q: How will I know if I won an item?
Winners will be notified via email and/or text after the auction closes.

Q: How do I pay for my item?
You can complete your payment online via the link provided in your winner notification. If you're at the event, you may also pay in person with one of our volunteers. We accept credit cards, checks, and other payment methods coordinated with the Foundation.

Q: How do I get my item?
If you're attending the event, you can pick up your item directly after payment. Please find a volunteer in the silent auction area to confirm payment and collect your item. If you are not attending the event, please allow up to 72 hours for us to reconcile all purchases. We will contact you via email with next steps for delivery or pickup coordination.

2025 Golf Tournament Silent Auction and Matching Donation Drive

Sponsored by East Coast Rigging & Scaffolding

Team Members