Oliver

Oliver was diagnosed with Beta-mannosidosis at the age of 4. He was the first patient diagnosed in the U.S. and underwent an experimental bone marrow transplant at the age of 4, the first in medical history for Beta-mannosidosis. Despite a successful transplant, Oliver symptoms continue to progress. He is now considered blind, experiences chronic pain, has difficulty swallowing, and has lost his ability to walk without adaptive equipment. Despite his challenges, Oliver loves his life. He has a wonderful sense of humor and a kind heart. He works hard in school, loves to travel, play basketball, and dreams of working for the LA Lakers one day.

In less than a year, Oliver has lost his ability to stand and walk as Beta-mannosidosis advances with devastating speed, stealing milestones no child should lose. A disease this cruel should not be allowed to keep taking without a fight. Urgent treatment and research are desperately needed to stop its progression—so no more children have to watch their world grow smaller while their courage remains so heartbreakingly strong.

Please Bid and Donate today to help us create a future where every child has access to life-changing treatments.

Hope for Oliver

Fundraiser to support Oliver as urgent research & treatment are needed!