This November, we are hosting a holiday season auction to raise money for the upcoming ION283 safety study.

Bidding will open on November 1st and continue through the 30th. All profits will go toward the safety study.

Each piece has been donated by Lafora families or affiliates. Check out our page to see what items are already available for bidding. We invite you to bid on an item to purchase or share this auction with your family and friends via this link: https://givebutter.com/c/laforaauction/auction.

Bid to support the first FDA-approved safety study for Lafora disease. Change the future!

We currently have no treatment options for Lafora disease, a fatal neurodegenerative condition that causes epilepsy and dementia in our children.

We face a pivotal opportunity.

The only barrier is funding.

Supporting the ION283 safety study, which has an estimated $1.5 million USD budget, creates a brighter future for the Lafora community.

The impact of the safety study will be vast. The enrolled Lafora patients will finally be able to trial a treatment option! Proving the drug is safe and effective at halting the disease progression could open up pathways to treatment for the entire community. This could change the trajectory of all affected by Lafora disease!

So, by participating in this online auction, you will not only be shopping before the holidays but also funding a milestone trial that we hope will save lives.

Join us today in our efforts to raise awareness about Lafora disease and funds for a cure. Spread the word—time is of the essence, and everyone can make a difference. Can you keep hope alive?

Auction Details:

How it will work

Some items will have a unique bidding timeline, but the entire online auction will run throughout November. Generous supporters have donated the items from around the world!

You will have to register to bid here: https://givebutter.com/c/laforaauction/auction.

Please review the details and shipping for each item you bid on. Some items have additional shipping costs, while others only ship to certain countries.

Can you help us?

This is an open call for in-kind donations for our holiday season auction! We request artwork, books, clothing, jewelry, tickets, vacations, and passes to events in your country.

Please email us with the subject “November Auction Donation” to get involved. You can donate items until November 24th.

45-minute Ask Me Anything session with author Intisar Khanani