Together for PURA

Commemorating a Decade Since Discovery: Propelling Forward into the Future

Organized by PURA SYNDROME FOUNDATION

$202,577

561 Supporters

81% of $250,000 goal

Teresa Hayden

Fundraiser since Jul 2024

Share Teresa Hayden's Page

$851

6 supporters

Teresa Hayden's Story

I have a wonderful 14 year old daughter with Pura Syndrome. She is the most beautiful soul in the world and my motivation for everything I do. I want to raise money for The Pura Syndrome Foundation to help with further research and education for families like ours. To show support for our community that I hold very close to my heart. And to spread awareness to all.

Team Leaderboard

Hattie's Heroes

2 members

$18,494

We Love Owen!

2 members

$15,545

Ava is Awesome

1 member

$10,025

Beethovan

1 member

$7,055

Taylor's Tribe

3 members

$4,090

Tilly's Warriors

2 members

$3,765

Brandon Strong

2 members

$3,494

Vivienne's Lemonade for PURA

1 member

$3,200

Micah's Magic

1 member

$3,050

Dax's Wolfe Pack

1 member

$1,902

Audrey’s Tribe

1 member

$1,232

Owen's Odyssey

1 member

$865

Kira's band

1 member

$855

Team Hayden

1 member

$851

Team Ship

1 member

$535

Team Ruby

1 member

$250

Go Gretchen Go

1 member

$229

Team Iowa

2 members

$115

TeamTru

1 member

$100

Trever’s Team

1 member

$50

Team Members

Owen's Climbers

$11,695

48 Supporters

Kris Magill

$9,405

46 Supporters

Ava is Awesome

$9,975

16 Supporters

Jack Manning

$2,552

55 Supporters

Taylor's Tribe

$3,475

30 Supporters

Tilly's Warriors

$3,640

28 Supporters

Vivienne's Lemonade for PURA

$3,100

26 Supporters

Liz Astridge

$3,850

14 Supporters

Brandon

$3,444.18

12 Supporters

Dax

$1,901.53

21 Supporters

Micah's

$3,050

12 Supporters

Sarah Anderson

$1,132

25 Supporters

Story

$202,577

561 Supporters

81% of $250,000 goal

Anonymous made a donation

3 days ago

May Allah grant us all with PURA Jannah ! Inchallah!

Anonymous loved this

$150

Tilly's Warriors received a $150 donation from Jim Melendi

12 days ago

In honor of my dear friend, Michael Bookman.

Barbara loved this

$25

Tilly's Warriors received a $25 donation from Phyllis Rogoff

12 days ago

In loving memory of Mike Bookman

Anonymous and 1 other

$100

Sarah Falcone made a $100 donation

12 days ago

Barbara loved this

$100

Tilly's Warriors received a $100 donation from The Gibson Family

13 days ago

For Tilly in memory of Mike Bookman.

Barbara loved this

$25

Tilly's Warriors received a $25 donation from Shirley and Frank Entis

14 days ago

Sincere condolences on the passing of your beloved husband, Michael Kurt Bookman

Barbara loved this

$100

Barbara Cerra made a $100 donation

16 days ago

In honor of our Elaina Joy.

Barbara and 2 others

Nancy She is so beautiful and thank you!

16 days ago

$100

Brandon received a $100 donation from Mimi and Papa

18 days ago

With all our love.

Anonymous and 3 others

Together for PURA

By PURA SYNDROME FOUNDATION

Together for PURA

Commemorating a Decade Since Discovery: Propelling Forward into the Future

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