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Join the Race to Cure ALD

Run, walk, or give β€” every action moves us closer to a cure.

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Organized by Cure ALD

$70,479

100% of $70,000 goal

331 Supporters

Theodore Wiener

Theodore Wiener

Fundraiser since Jun 2026

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$7,090

25 supporters

709% of $1,000 goal

Theodore Wiener's Story

πŸ₯³ It's my 5th birthday! Thank you for supporting our family's mission to cure ALD!


Over a year ago, our world shifted forever. Theodore and Terry were both diagnosed with Adrenoleukodystrophy (ALD)—a rare genetic neurological condition that can damage the brain, spinal cord, and adrenal glands. Find out more about our story.

Every few months, Theodore undergoes brain MRIs and blood tests. We're watching, waiting, hoping he remains asymptomatic. But hope alone isn't enough. We won't sit on the sidelines while this disease threatens our son and so many others.

The stakes couldn't be higher. In its most severe form, cerebral ALD can cause devastating brain damage in young boys. While stem cell transplants can stop progression, they can't reverse existing damage—and they don't prevent other potential symptoms in the spinal cord and adrenal glands. They're also very risky procedures.

We're not waiting. We're fighting. That's why we created Cure ALD—to fund research that could lead to safer treatments, prevention of symptoms, or even a cure.

Will you join us? Your donation directly supports the scientists working to change the future of ALD.

πŸ’™ Thank you for standing with our family and with every family facing ALD. Together, we're turning hope into action.

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Race to Cure ALD

Sunday, September 20 @ 9 AM PDT

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