Every heartbeat tells a story.

For families of children born with congenital heart disease (CHD), every appointment, every test, and every procedure carries hope—and uncertainty. Parents are often forced to make impossible decisions based on limited information because no single hospital has seen every child, every outcome, or every answer.

That can change.

The Congenital Cardiac Research Collaborative (CCRC) brings together 19 of the nation’s leading pediatric heart centers to do something no hospital can do alone: share knowledge across institutional borders, learn from every child, and turn that collective experience into better care for every family.

When hospitals work together instead of in isolation, patterns emerge. Doctors discover which treatments lead to better outcomes, which interventions help children thrive, and how to give every family the benefit of knowledge gathered across thousands of young patients, not just the ones treated at a single institution.

Your generosity makes this possible.

Every dollar supports:

Patient registries that securely collect and analyze vital clinical data.
Researchers and clinicians who transform that data into lifesaving discoveries.
Studies that improve treatment strategies and outcomes.
Collaboration across leading pediatric heart centers so knowledge is shared—not siloed.

The findings don’t stay within our network. They are published in high-impact journals and shared with pediatric cardiologists around the world, helping improve care for children everywhere.

Behind every data point is a child learning to walk, celebrating a birthday, blowing out birthday candles, starting school, or simply getting the chance to come home.

Behind every breakthrough is a family given more time, more hope, and more moments together.

Together, we can ensure that the next child diagnosed with CHD benefits from everything we’ve learned, not just where they’re treated, but from the collective wisdom of an entire community committed to changing what’s possible.

Because every child deserves more than hope.

Every child deserves the best chance at a healthy future.

Donate. Participate. Share. Help us change the future of CHD one child, one family, and one breakthrough at a time.

Cardiac Cycle Spin-a-Thon

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Team Members