A group of families fighting an ultra-rare genetic disorder called SPG47 are racing to fund a gene therapy clinical trial that could lead to the first ever treatment.

A team at Boston Children's Hospital is ready to move forward — but $4 million must be raised in order to begin the trial. For these children and families, this research represents hope for the future.

Every share, every donation, and every voice helps move this forward. Please help us spread the word and support the families working to fund a potential treatment for SPG47. Sharing this link with your network on social media is optional and not required to enter, but please consider doing so!

Cure SPG47 Dream Big Sweepstakes Official Rules:

1. Sponsor

The Cure SPG47 Dream Big Sweepstakes (“Sweepstakes”) is sponsored by Cure SPG47, a 501c3 nonprofit organization located at 10 Fanaras Drive, Salisbury, MA 01952 (“Sponsor”).

2. Sweepstakes Period

The Sweepstakes begins at 12:00 PM Eastern Time on April 8, 2026 and ends at 12:00 PM Eastern Time on July 31, 2026 (“Sweepstakes Period”).
Entries received outside the Sweepstakes Period are not eligible.

3. Eligibility

Open to legal residents of the fifty (50) United States and the District of Columbia who are 18 years of age or older at the time of entry (Must be 21+ in New York state).
Employees, officers, directors, and volunteers of Sponsor and their immediate family members are not eligible.
Void where prohibited.
Because of legal requirements related to sweepstakes, we are only able to accept entries from U.S. residents. However, people from around the world can still support the campaign by donating or sharing the cause!

4. How to Enter

Online / Donation Entries

Participants may optionally make a donation to Cure SPG47.

Each $1 donated earns one (1) entry in the Sweepstakes. Example: $100 earns 100 entries.

Free Alternate Method of Entry (AMOE)

To enter without donating:

Hand-print your full name, address, phone number and email address on a 3×5 card.
Mail your card to:

Cure SPG47 Dream Big Sweepstakes AMOE
10 Fanaras Drive
Salisbury, MA 01952

One AMOE entry per envelope will be accepted
Each AMOE postcard received counts as one (1) entry.

Entry Limit: Maximum 10,000 entries per person, regardless of method.

5. No Purchase or Donation Necessary

NO PURCHASE OR DONATION IS REQUIRED TO ENTER OR WIN.

Donations support Cure SPG47’s mission but do not increase your odds of winning because all entries have equal chance. All participants may enter for free using the Alternate Method of Entry (AMOE) described below.

6. Prize

Grand Prize: Disney vacation vouchers with an approximate retail value of $20,000.

Cash Alternative: Winner may elect to receive a cash payment of $15,000 in lieu of the Disney vacation.

Prize is non-transferable except as described herein.

7. Winner Selection

Winner will be selected in a random drawing conducted on or about August 3, 2026 from all eligible entries received.

Odds of winning depend on the total number of eligible entries.

8. Winner Notification

The potential winner will be notified via email and/or phone within 5 business days of the drawing.
The winner must respond within 5 business days or prize will be forfeited and an alternate winner selected.

9. Taxes

All federal, state, and local taxes associated with the prize are the sole responsibility of the winner.
Sponsor will provide IRS Form 1099 for prizes exceeding $600.

10. Publicity

By accepting the prize, the winner grants Sponsor permission to use their name, likeness, and hometown for promotional purposes without additional compensation, unless prohibited by law.

11. General Conditions

Participation constitutes acceptance of these Official Rules.
Sponsor reserves the right to cancel, suspend, or modify the Sweepstakes if fraud, technical failures, or other factors impair the integrity of the Sweepstakes.
If fewer than 50,000 entries are received, sponsor reserves the right to modify, cancel, or terminate the sweepstakes at their sole discretion, or reduce the prize value proportionately.
Sponsor’s decisions are final in all matters related to the Sweepstakes.

12. Privacy

By entering, you agree that Sponsor may collect and use your personal information provided in the entry form to administer the Sweepstakes and for other purposes as described in Sponsor’s privacy policy.

13. Dispute Resolution

Except where prohibited by law, as a condition of participating in the Sweepstakes, entrant agrees that any and all disputes, claims and causes of action arising out of, or connected with, the Sweepstakes or prize awarded shall be resolved individually, without resort to any form of class action.

14. State Compliance

Because the Sweepstakes is open nationwide, registration and bonding requirements have been met in the states of New York and Florida in accordance with state law.

15. Winner List

To request the winner’s name, send a self-addressed stamped envelope to:

Cure SPG47 Dream Big Sweepstakes Winner Request
10 Fanaras Drive
Salisbury, MA 01952

Requests must be received within 60 days after the drawing.

Cure SPG47 Dream Big Sweepstakes

WIN a $20,000 Disney Dream Vacation or Cash Alternative and Support Cure SPG47 research!