DARE to Believe 5K

Help Raise $25,000 towards Gene Therapy research for Refsum Disease

$7,408

41 supporters

$25,000 goal

Fundraise

2 months 2 weeks remaining

Team Members

Kristie

$5,226

32 supporters

Susan

$1,649

5 supporters

Michele

$0

0 supporters

Zahra

$0

0 supporters

John

$0

0 supporters

Event

JUN
12

DARE to Believe 5K

Saturday 8:00 AM - Sunday 11:59 PM EDT

Live Stream

Add to Calendar 2021-06-12 08:00:00 2021-06-20 23:59:00 America/New_York DARE to Believe 5K DARE to Believe! Let’s all join together in a 5K to support gene therapy research for Refsum Disease. Walk, run, ride, swim, or any other activity of your choice. Once you cross the finish line, send your pics to [email protected] and show us how YOU 5K! Donations are also welcome. All registrations and donations up to 10K will be matched increasing your impact!! The first 100 participates and donors will receive a free DARE face mask! You or your team can participate anytime the week of June 12 to June 20. The event is happening the week before Father’s Day, so grab the hand of a father, grandfather, or special man in your life. 5K Registration is $19. For an additional $20 you can receive a DARE to Believe event t-shirt. T-shirts are only available in the United States and Canada. All amounts are in US Dollars. Individual fundraising is encouraged. Just click the Fundraise button on this page to create your own custom fundraising page and share with your network.

Details to view the event are private and will be sent along with your ticket purchase.

DARE to Believe! Let’s all join together in a 5K to support gene therapy research for Refsum Disease. Walk, run, ride, swim, or any other activity of your choice. Once you cross the finish line, send your pics to [email protected] and show us how YOU 5K! Donations are also welcome. All registrations and donations up to 10K will be matched increasing your impact!! The first 100 participates and donors will receive a free DARE face mask! You or your team can participate anytime the week of June 12 to June 20. The event is happening the week before Father’s Day, so grab the hand of a father, grandfather, or special man in your life. 5K Registration is $19. For an additional $20 you can receive a DARE to Believe event t-shirt. T-shirts are only available in the United States and Canada. All amounts are in US Dollars. Individual fundraising is encouraged. Just click the Fundraise button on this page to create your own custom fundraising page and share with your network.

Organizer

Created By

Global DARE Foundation

EIN: 84-3343395

Story

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease.  DARE stands for Defeat Adult Refsum Everywhere. We DARE to believe there is a cure for Adult Refsum Disease.

Adult Refsum disease is a genetic disorder that impacts the metabolism of phytanic acid which is found in food.  The disease significantly impact quality of life of patients by causing vision loss, hearing loss, loss of smell, mobility issues and more.  People with Refsum Disease must also go on a very strict diet to slow progression of current symptoms and avoid life threatening symptoms.   A better therapy is needed!

As seen in Global DARE Foundation's recent webinar, Refsum disease is a strong candidate for Gene Therapy.  We are running this fundraiser to raise the necessary funds to start the pre-clinical work for Gene Therapy.   

Please support us in our mission to find a cure!

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$7,408

41 supporters

$25,000 goal

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