We are excited to invite you to our largest fundraising event of the year, the annual Ghost Bowl a Thon, benefiting Spina Bifida of Louisiana. As a non-profit, tax-exempt 501(c)(3) organization, our mission is to provide support to individuals with spina bifida and their families, while also raising awareness about spina bifida and its prevention.

We invite you to grab your family and friends and join us as we rock n' bowl the day away, all while raising funds for a great cause. Simply click the "Register a Team" button next to Team Leader above to start fundraising. You can also help spread the word by sharing our page with your loved ones.

Your donations help us continue to provide vital support and resources to our families. Some of the supports and services we provide include Camp Friendship, Family Conference, Annual Family Picnic, Annual Holiday Party and much more. We hope to see you at this year's Ghost Bowl a Thon as we come together to make a difference in the lives of those affected by spina bifida.

Providing Information & Support

We are here to support individuals with Spina Bifida and their family. Whether you need information on Spina Bifida, local resources, or connecting with other families - reach out to us!

Camp Friendship

Camp Friendship is a free week-long, summer camp for children - 3 years of age through high school - with Spina Bifida and similar orthopedic conditions. For more information about camp, click HERE.

Community Activities

Throughout the year, SB of Louisiana organizes activities for our families. We also organize activities for those 16 years old age and older, with Spina Bifida.

Statewide Outreach and Awareness

As the sole chapter in the state, SB of Louisiana is committed to reaching out to families from all areas of the state. We have designated outreach coordinators who are tasked with connecting families and planning various activities throughout the year. See the current list HERE.

Financial Assistance & Scholarships

We offer various scholarship and assistance funds to our members. Those include a higher education scholarship, medical assistance fund, and driver's evaluation/vehicle modification fund. For more information, click HERE.

Programs and Services Reflect the Organization's goals...

☑ To enable children, youth and adults with Spina Bifida to maximize their potential for education achievement, employment, independence and a healthy life.

☑ To significantly reduce the incidence of Spina Bifida and related conditions

☑ To enable families of individuals with Spina Bifida to receive caregiver support from each other.

☑ To assure that individuals with Spina Bifida and related conditions receive entitled medical, educational and vocational services.

☑ To advocate for acceptance, accessibility rights, inclusion, treatment options and well-being of people with Spina Bifida.

☑ To advocate for appropriate educational, vocational and community support to encourage self-determination.

☑ To promote research for the prevention of Spina Bifida and related secondary conditions.

19th Annual Bowl A Thon

Sunday, October 18, 1 PM - 4 PM

Team Leaderboard

Team Members