96% of $20,000 goal
Join a Team
Join a Team
Ghost Bowl a Thon
Sunday from 1:00 PM - 4:00 PM CDT
Sunday, October 23, 2022 1 pm - 4 pm
Join us as we gather together to raise funds for Spina Bifida of Louisiana! Spina Bifida of Louisiana is a non-profit,
tax-exempt 501(c)(3) organization for the expressed purpose of
providing support to individuals with spina bifida, and their families
in Louisiana, and to increase awareness about spina bifida and its
Our annual Ghost Bowl a Thon is our largest fundraising event. Grab your family and friends and join us as we rock n' bowl the day away raising funds for Spina Bifida of Louisiana! Click the "Create/Join a Team" button above and start fundraising! Share our page with your family and friends
Providing Information & Support
We are here to support individuals with Spina Bifida and their family. Whether you need information on Spina Bifida, local resources, or connecting with other families - reach out to us!
Camp Friendship is a free week-long, summer camp for children - 3 years of age through high school - with Spina Bifida and similar orthopedic conditions. For more information about camp, click HERE.
Throughout the year, SB of Louisiana organizes activities for our families. We also organize activities for those 16 years old age and older, with Spina Bifida.
Statewide Outreach and Awareness
As the sole chapter in the state, SB of Louisiana is committed to reaching out to families from all areas of the state. We have designated outreach coordinators who are tasked with connecting families and planning various activities throughout the year. See the current list HERE.
Financial Assistance & Scholarships
We offer various scholarship and assistance funds to our members. Those include a higher education scholarship, medical assistance fund, and driver's evaluation/vehicle modification fund. For more information, click HERE.
Programs and Services Reflect the Organization's goals...
☑ To enable children, youth and adults with Spina Bifida to maximize their potential for education achievement, employment, independence and a healthy life.
☑ To significantly reduce the incidence of Spina Bifida and related conditions
☑ To enable families of individuals with Spina Bifida to receive caregiver support from each other.
☑ To assure that individuals with Spina Bifida and related conditions receive entitled medical, educational and vocational services.
☑ To advocate for acceptance, accessibility rights, inclusion, treatment options and well-being of people with Spina Bifida.
☑ To advocate for appropriate educational, vocational and community support to encourage self-determination.
☑ To promote research for the prevention of Spina Bifida and related secondary conditions.