Haunted Hustle Sponsorship - Oct 17 2026

We are excited to announce the third annual Haunted Hustle 5K in Historic Newtown Borough, PA, on Saturday, October 17, 2026 at 9 AM. Creating this Halloween themed charity run/walk has promoted a unique fun community event that benefits the NR2F1 Foundation. We can't do it without you!

Our daughter, Maggie, was born with an ultra-rare genetic disorder of the NF2F1 gene that is found in approximately 500 people in the world. This genetic disorder has features of autism, intellectual disabilities, visual impairments and sometimes seizures, along with other challenges. Early on, we struggled to understand Maggie’s diagnosis and how to best support her healthy development. Through this journey, we helped co-found, along with a group of dedicated NR2F1 parents, the non-profit NR2F1 Foundation.

The NR2F1 Foundation’s mission is to empower families and individuals living with rare NR2F1 variants through education, advocacy, and research. We are making strides in understanding these challenges and helping to give the best life possible to these individuals and their families.

The Haunted Hustle 5K in Newtown, PA, will donate ALL PROCEEDS to the NF2F1 Foundation to help continue our understanding of this disorder and development of potential strategies. Through your support of the Haunted Hustle 5K and the NR2F1 Foundation, we strive to meet our mission and encourage happy and healthy lives for all those affected.

Thank you,

Jen & Eric Nicholl

Newtown, PA

SPONSORSHIP LEVELS:

BRONZE $250

*SMALL LOGO ON T-SHIRT (final logos due for t-shirt production on 9/1)

(GROUP SPONSOR SOCIAL MEDIA FEATURE)

SILVER $500

*MEDIUM LOGO ON T-SHIRT (final logos due for t-shirt production on 9/1)

1 SOCIAL MEDIA FEATURE

*BANNER AT RACE SITE (SUPPLIED BY SPONSOR)

GOLD $1,000

*LARGE LOGO ON T-SHIRT (final logos due for t-shirt production on 9/1)

2 SOCIAL MEDIA FEATURES

*BANNER AT RACE SITE (SUPPLIED BY SPONSOR)

ANNOUNCEMENT AT RACE

PREMIER - TBD

PREMIER SPONSORSHIP OPPORTUNITIES CUSTOMIZED WITH SPONSORSHIP MANAGER

*High Resolution Logo Deadline: SEPTEMBER 1 st

**After completing the sponsorship form, please send your logo and business information to newtownhauntedhustle@gmail.com

🎃🎃🎃🎃🎃🎃🎃🎃🎃🎃🎃🎃

Why This Matters

BBSOAS (Bosch-Boonstra-Schaaf Optic Atrophy Syndrome) is a rare, complex neurodevelopmental condition caused by variants in the NR2F1 gene. It affects vision, development, and often causes seizures or epilepsy.

Today, there are only ~500 diagnosed individuals worldwide — yet families urgently need answers, treatments, and hope.

Research is the only way forward.

What the NR2F1 Foundation Does

The NR2F1 Foundation is a global, patient-led nonprofit dedicated exclusively to families affected by rare NR2F1 gene variants.

Our vision is that every single family and individual living with rare NR2F1 variants will live a full and empowered life. Our mission is to empower families and individuals living with rare NR2F1 variants through education, advocacy and research.

Research the NR2F1 Foundation Funds — Around the World

The NR2F1 Foundation currently invests in BBSOAS research programs in Germany, France, and Italy, and in 2026 will open the first-ever dedicated BBSOAS research laboratory in the United States at Cincinnati Children’s Hospital Medical Center, led by Dr. Veeral Shah.

This U.S. lab — funded entirely by the Foundation — is a major milestone for families.

The 2026 Funding Goal: $320,000

Your donation helps fund:

NR2F1-exclusive post-doctoral researchers in Germany and Italy
The first dedicated BBSOAS research lab in the U.S.
The first-ever BBSOAS drug repurposing observational study
The 2026 BBSOAS Family & Scientific Conference

These projects move families closer to real treatments.

Help Lead the Way to Answers

For families living with BBSOAS, research means hope.

Your support fuels the science that will change lives.
Please donate today and help lead the way to answers.

Haunted Hustle Sponsorship 2026

October 17, 2026