RBF Worldwide 5k

Support the Rory Belle Foundation and NARS1 Research

Donate

Organized by Rory Belle Foundation

$11,047

109 Supporters

22% of $50,000 goal

Kit Riggs

Fundraiser since Mar 2025

Share Kit Riggs' Page

$135

3 supporters

45% of $300 goal

Kit Riggs' Story

Jeff, Madge, and I will be doing a 5k to celebrate the life of Rory Belle, to cheer on James and his crew in the Boston marathon, and to support my fellow board members doing the 5k in Boston. As a plucky little patient advocacy organization, we are making big strides towards therapeutics for kids with NARS1 disorder. In this time of profound darkness in our country, the Rory Belle Foundation is my daily dose of hope and as well as a constant reminder that a few determined people really can make a difference. Thank you for joining me in our mission!

Team Members

Judy KJ

$3,525

22 Supporters

Teri

$1,730

24 Supporters

Rachel

$1,560

12 Supporters

Laurie Marette

$885

7 Supporters

Ross

$642

6 Supporters

Katie

$600

3 Supporters

Molly

$270

4 Supporters

Meaghan

$155

3 Supporters

Kit

$135

3 Supporters

Brie

$80

2 Supporters

Bailey

$100

1 Supporter

Ryan

$100

1 Supporter

Event

APR

RBF Worldwide 5k

Saturday, April 19th, 12:00 AM – 11:00 PM CDT

Live Stream

This event will be livestreamed on our Givebutter page: https://givebutter.com/jAqdmD

Join The Rory Belle Foundation for our first worldwide 5k! Support our board members as they run the Boston 5k on April 19th, or gather your friends and family to run your own 5k! We are raising critical funds for gene therapy creation - a therapeutic that can significantly improve the lives of our individuals affected by NARS1 Disorder. Order an official 5k shirt to wear on race day here ! https://www.bonfire.com/5k-run-for-nars1-apparel/ Share your photos and videos from your own 5k by tagging #RunforNARS1.

Donate

$11,047

109 Supporters

22% of $50,000 goal

$50

Laurie Marette received a $50 donation from Riley Williams

2 days ago

For a good cause!

$100

Judy KJ received a $100 donation from Peg and bill confrey

2 days ago

Sorry we missed the walk. Praying for breakthrough research that will help Grady and others. 🙏🏻

$500

Laurie Marette received a $500 donation from Mid America Marketing

3 days ago

$15

Ross received a $15 donation from Colette

4 days ago

Fair play Ross.

$25

Meaghan received a $25 donation from Kendall Kapitan-Hondl

4 days ago

$25

Judy KJ received a $25 donation from Charlie Nason

4 days ago

$25

Megan Barry made a $25 donation

4 days ago

$25

Nancy Kohout made a $25 donation

4 days ago

Keep doing the good work!

Kathleen loved this

RBF Worldwide 5k

By Rory Belle Foundation

RBF Worldwide 5k

Support the Rory Belle Foundation and NARS1 Research