What is LLPR?

Limb Loss and Preservation Registry (LLPR) is a collaborative data hub designed to collect clinical patient data and perform analysis to improve the quality of care and functional outcomes for the limb loss and limb difference (LLLD) population in the US.

A prevalence study published on February 14, 2024, found that there are more than 5.6 million people living with limb loss and limb difference in the United States. Of that 5.6 million, nearly 2.3 million people are living with limb loss and another 3.4 million people are living with limb difference.

However, those are the only data we have on the acquired and congenital limb loss and limb difference population in the United States. Lack of population data has meant lack of US policy representation and, therefore, healthcare denial by insurance providers. Read the full study.

Hear from patients on what LLPR means to the acquired and congenital limb loss and limb difference community.

RICHARD HARDY, FORKLIFT DRIVER & BELOW THE KNEE AMPUTEE (BKA)

“How great would it be if all the physicians, doctors had that same data to look at on their amputated patients.”

CPT (RET) MATTHEW BACIK, MBA & BELOW THE KNEE AMPUTEE (BKA)

“What are the different outcomes if you just go ahead and do the amputation first versus trying to wait…that would be great data that could change the quality of life for people going through this...”

Help Individuals like Richard and Matthew.

You can directly help individuals like Richard and Matthew by supporting LLPR. LLPR presents valuable data insights to care givers for improved quality of life for patients using real patient data. LLPR is a registry designed to collect clinical patient data and perform analysis to drive improvements in both quality of care and functional outcomes for the limb loss and limb difference (LLLD) population in the US.

LLPR seeks your support of our 2-year strategic plan to achieve 3 objectives:

#1 Expand LLPR participating hospital systems and O&P practices, which in turn increases the size of the represented population.

Is LLPR in your state? Check out the map below:

#2 Develop a Patient Engagement Portal to collect patient reported outcomes.

#3 Continue to develop dashboards and deliver the most accurate and cutting-edge analytical insight to improve patients’ lives.

LLPR Launch Campaign

By Thought Leadership & Innovation Foundation

LLPR Launch Campaign