Because it takes a community. For many of our families, their child is a n=1, meaning the only person in the entire world with that specific MAPK8IP3 variant. For others, they may be one of two, or one of 16 (our largest group). The rarity of this disorder can often feel overwhelming and isolating. This Giving Tuesday, we are launching an opportunity to take steps forward with us, 8,003 to be precise, to correlate with the MAPK8IP3 gene, all the way to Rare Disease Day, 2027. Join our community, make a donation towards our mission, and add your steps in alongside our families. Every Mile, For Every Family, For Moving Us Forward. Thank you for your generosity and being part of our community 🩶.

8,003 Miles for MAPK8IP3

Giving Tuesday to Rare Disease Day Virtual Walk

Team Members