2022 ULF Ann Moser Gala: Luminaries
Friday from 5:30 PM - 11:55 PM CDT
The presentation will be streamed as a part of the in-person event and through the virtual access option! Separate registration required. A recording of the presentation will be posted to the ULF Office YouTube Channel in July.
For a $25 donation, you can write a note to Ann and have your family's name included in our virtual luminary presentation. The presentation will be streamed as a part of the ULF Tribute Gala on Friday, June 24, 2022. The recording of the presentation will be posted to the ULF Office YouTube Channel in July. Thank you for your support of the ULF, and for celebrating 40 Years of Hope!
Located in DeKalb, Illinois, the United Leukodystrophy Foundation (ULF), is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling. The ULF works to establish a communication network among families; as well as increases public awareness and acts as an information source for health care providers by promoting and supporting research into causes, treatments, and prevention of the leukodystrophies.
Leukodystrophies comprise a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted.
Every year, the ULF puts a call out to the leukodystrophy medical professional community asking for research proposals in need of funding. The number of grant applications have consistently grown in the past years with submissions coming in from all over the United States as well as internationally. Proposals are considered by our Medical and Scientific Advisory Board and ranked based on merit and potential impact to the field. Thanks to your generous donations, the ULF has been able to grant $450,000 for medical research since 2010.
Incorporated in 1982, the United Leukodystrophy Foundation is solely supported and funded by donations.
Federal Tax Identification Number/EIN: 35-1557361