The Mikayla Sarai Foundation is a purpose-driven organization committed to advancing health equity and transforming outcomes for individuals and families impacted by sickle cell disease and other health disparities. Rooted in lived experience and elevated through leadership, the foundation operates at the intersection of advocacy, access, and influence.

Every day, children and families living with sickle cell face battles most of us will never see. Together, we can turn pain into progress, through awareness, advocacy, and funding for research that brings real hope.

2000+ lives touched through awareness and outreach
10+ years building partnerships and advocacy
Hundreds of volunteers making a difference
1 powerful movement sparked by Mikayla’s story

Mikayla wearing dark blue doctors scrubs, with a stethoscope around her neck, holding a syringe.

Helping Each Other Can Make the World Better
What began with one girl’s fight has grown into a movement for health equity and change. We unite families, advocates, and healthcare leaders to raise awareness, expand resources, and push for research that changes the future of sickle cell.

From the day Mikayla was born, she faced an uphill battle with Sickle Cell Disease, a genetic condition that causes red blood cells to become rigid and crescent-shaped. These cells can block blood flow, cut off oxygen, and trigger severe pain, organ damage, and life-threatening complications. Despite it all, Mikayla has grown into a fighter, a leader, and an inspiration.

The Mikayla Sarai Foundation was created in her honor to do more than raise awareness. We exist to change how the world understands and responds to Sickle Cell Disease by linking our work to the larger fight for health equity. Too often, families affected by this disease carry not only the medical burden but also systemic barriers in limited resources, delayed care, and bias in the healthcare system.

Our mission is simple and urgent: bridge those gaps. We bring people together through education, advocacy, and community support so every family touched by Sickle Cell Disease has the resources, respect, and quality care they deserve. But we also know awareness alone isn’t enough. Real change requires investment in bold solutions and increased funding for research research that will lead to better treatments, greater access to care, and ultimately, cures. We believe health equity is not a privilege, it’s a right. By standing with warriors and their families, we’re working toward a future where every person receives quality care, no matter their background or circumstances.

Your Generosity Sparks Change
Every gift fuels education, advocacy, and the research that families urgently need. Together, we can create a future where every child has the chance to thrive.

We’d love to hear from you. Contact us at info@mikaylasarai.org if you would like to receive more information about our programs, or if you would like to become a volunteer.