💙 Our Mission in Action

Partners and spouses of individuals with cystic fibrosis play a critical, yet often unrecognized, role in care. They manage complex treatments at home, navigate unpredictable health changes, and provide steady emotional support through every stage of the disease, often without access to the resources, guidance, or inclusion that reflect the significance of their role. Despite being deeply embedded in the day-to-day reality of cystic fibrosis, partners are frequently overlooked in clinical discussions, educational materials, and support systems within the broader CF community. Project CF Spouse exists to change that by ensuring these experiences are acknowledged, supported, and represented.

💙 Why NACFC Matters

The North American Cystic Fibrosis Conference (NACFC) is one of the most influential gatherings in the cystic fibrosis community, bringing together clinicians, researchers, industry leaders, and organizations focused on advancing care and outcomes. It is a space where ideas are shared, priorities are shaped, and the future of CF care is actively influenced. However, the lived experiences of partners and spouses have historically been underrepresented in this setting. Attending NACFC provides Project CF Spouse with the opportunity to advocate for greater recognition of partners within care models, build meaningful relationships with clinicians and care teams, share real-world insight into the partner experience, and elevate awareness of the unmet needs that continue to exist.

💙 Why This Matters

Ensuring that partners and spouses are represented in spaces like NACFC is not just about visibility—it is about shaping the future of cystic fibrosis care in a way that reflects the full reality of the disease. When partner perspectives are included, care becomes more informed, support systems become more effective, and the broader CF community becomes more inclusive. This work is about moving beyond acknowledgment and toward meaningful integration of the partner role in both care and conversation.

💙 What This Funding Supports

Project CF Spouse is raising $6,500 to support conference registration, travel and lodging, and the materials and outreach efforts necessary to extend the organization’s impact beyond the conference itself. This funding ensures that the partner perspective is not only present at NACFC, but actively contributing to the conversations that shape the future of cystic fibrosis care.

💙 Call to Action

Support Project CF Spouse in bringing the partner voice to NACFC 2026. Your donation helps ensure that those who live this experience every day are represented in the conversations that matter most. If you are unable to give, sharing this campaign is another meaningful way to help amplify a voice that deserves to be heard.

💙 If the Goal Is Not Met

If the full fundraising goal is not reached, all funds will continue to support Project CF Spouse’s mission, including efforts to attend NACFC and to further develop resources and support for partners and spouses of individuals with cystic fibrosis.

Bringing the Partner Voice to NACFC 2026!!

For those living the reality of CF alongside the ones they love