What is PFIC?

Progressive familial intrahepatic cholestasis (PFIC) is a group of rare genetic disorders that can lead to liver failure during childhood. While the exact prevalence is unknown, PFIC is estimated to affect 1 in 50,000-100,000 people worldwide. There is currently no cure for PFIC. Many PFIC patients receive liver transplants to help manage their disease.

How does PFIC Network help?

Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network was founded in 2018 by 3 mothers of PFIC patients. Our mission is to improve the lives of patients and families worldwide affected by PFIC. We strive to equip patients and families with the educational & support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While PFIC Network is based in the United States, we serve a global population and provide resources for patients and families all over the world.

How can you help?

Form groups of supporters with family & friends!
Share our posts & encourage your network to give!
Start a social media fundraiser for PFIC during October!
Tell anyone & everyone why this cause is important to you!

How do I make a group?

Set a fundraising goal and make a main campaign page here on Givebutter!
Recruit family and friends to set up their own individual fundraising pages.
Provide your group with resources to use while promoting their page.
While fundraising, your group will share their pages on their social media. Track your group’s progress throughout and offer support as needed.
Don’t forget to thank your team and supporters when the fundraiser is over!

I have a group, now what?

Host a bake sale!
Ask a local business to host a PFIC Day where some of their proceeds go to PFIC Network!
Have a PFIC party!
If you can imagine it, make it happen!
SHARE, SHARE, SHARE: Anywhere and everywhere!

Need more fundraising resources?

Check out our fundraising toolkit! You can also contact us directly with questions!

2025 PFIC Awareness Day

Team Members