What is PFIC?

Progressive familial intrahepatic cholestasis (PFIC) is a group of rare genetic disorders that can lead to liver failure during childhood. While the exact prevalence is unknown, PFIC is estimated to affect 1 in 50,000-100,000 people worldwide. There is currently no cure for PFIC. Many PFIC patients receive liver transplants to help manage their disease.

How does PFIC Network help?

Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network was founded in 2018 by 3 mothers of PFIC patients. Our mission is to improve the lives of patients and families worldwide affected by PFIC. We strive to equip patients and families with the educational & support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. While PFIC Network is based in the United States, we serve a global population and provide resources for patients and families all over the world.

PFIC Awareness Day 2023

This year for PFIC Awareness Day, PFIC Network is raising $50,000 by October 5 to build a research program centered on the patient voice and collaboration in research. By doing so, we will improve care and treatment outcomes for PFIC by strengthening relationships with expert researchers at our annual Family & Scientific Conference, growing our patient registry into a valuable research tool, and directly funding research that is meaningful to our community.

PFIC Charity Open at Redpoint BBQ

Discing For a Cure!