Rare Disease Day, 24 Hours of Support for TBRS Families

Help us raise $5,000 today to support families living with Tatton Brown Rahman Syndrome!

Today is Rare Disease Day, a day to recognize the millions of individuals and families living with rare conditions, and the challenges they face every day.

Tatton Brown Rahman Syndrome (TBRS) is a rare genetic condition that can affect development, mental health, and physical health. For many families, the diagnosis brings years of uncertainty, complex care needs, emotional strain, and a sense of isolation. Too often, families are left to navigate these challenges on their own.

That’s why we created the TBRS Circle of Support.

The TBRS Circle of Support is our commitment to walking alongside families through the hardest moments of their journey. Through this program, we provide practical help, emotional support, and meaningful connection when families need it most.

Your donation today supports:

⭐TBRS Care Packages for families experiencing crisis or acute stress

⭐TBRS Social Groups for diagnosed individuals, fostering connection and belonging

⭐TBRS Family and Friends Support Groups, creating space to share, learn, and feel understood

⭐1:1 support meetings for newly diagnosed families or those navigating difficult moments

⭐Support referrals through our community services platform, helping families connect to local resources and assistance

On Rare Disease Day, we are raising $5,000 in 24 hours to ensure these supports remain available, responsive, and accessible to families across the TBRS community.

Every gift, at any level, makes a difference. Your support helps us answer the call, show up in crisis, and remind families that they are not alone.

Thank you for your support!

Rare Disease Day 2026

24 Hours of Support for TBRS Families