Rare disease funding is limited. Join Cure ALD’s Rare Disease Awareness Month fundraising efforts to support the research and development of new ALD treatments. All money raised will be directly donated to carefully vetted research projects that align with Cure ALD's mission to find a cure or preventative treatment. <Find out more about Cure ALD> [add link to Our Story]

Why now?

X-linked Adrenoleukodystrophy (ALD) affects 1 in 17,000 people, impacting the brain, spinal cord, or adrenal glands with varying severity. Young boys face the most devastating form—childhood cerebral ALD—which can be fatal without early intervention. While treatment options exist for some manifestations, there is no cure or preventative treatments. Since there is limited funding for rare disease research, funding for ALD research is heavily reliant on donations. Your fundraising effort is vital to ensuring that research for ALD continues.

Cure ALD is a 501(c)(3) nonprofit organization. Tax ID: 39-4049060. Donations are tax-deductible to the extent allowed by law.

Rare Disease Day 2026

By Cure ALD

Rare Disease Day 2026