Still's Disease Awareness Day

September 7th | #MyStills

A global awareness day to honor those whose lives are impacted by Still's Disease. Still's Disease Awareness Day was established for all people, patient organizations, and health service providers to celebrate those affected by Still's Disease globally.

AiArthritis: Official Hosts of Still's Disease Awareness Day

Still's Disease Awareness Day was established in 2015 by the International Still's Disease Foundation (ISDF) as an initiative to honor those living with Still's and to raise awareness about this disease. When the ISDF dissolved in 2017, they asked AiArthritis to house their remaining resources -- which included becoming the official hosts of Still's Disease Awareness Day.

The primary goal of this day is to increase awareness and education about Still's Disease -- which includes both systemic Juvenile Idiopathic Arthritis and Adult-Onset Still's Disease -- so we can expedite diagnosis, improve disease management, and help patients explain their disease to others. It's also a chance to help those living with Still's learn more about current research and other opportunities to better navigate their healthcare journey.

To learn more about Still's Day, visit this link: www.aiarthritis.org/stills_day.

Support AiArthritis' Work on Still's Day and Year-Round!

Please consider a gift to AiArthritis in support of Still's Disease Awareness Day. Your donation is vital in helping us keep our commitment to the International Still's Disease Foundation leaders upon dissolving into our nonprofit and to continue what they started.

A donation to AiArthritis on Still's Disease Awareness Day will support our year-round work to help those affected by Still's Disease, including:

Raising awareness and education about Still's Disease so we can increase diagnosis rates
Providing patient-led resources and tools that will support and empower Still's Disease patients, loved ones, and caregivers
Highlighting patient and advocate voices through our #MyStills social media campaign and exponentially increase awareness about Still's Disease for the public
Sharing updated Still's Disease research with constituents through our "Go With Us!" to Conferences program
- Note: The AiArthritis team shared breaking news about Still's Lung Disease from this year's European Alliance of Associations for Rheumatology (EULAR) conference!
Distributing Still's Disease brochures and emergency cards to general practitioners, specialists, and hospitals worldwide
Educating patients, caregivers, the public, and health professionals about Macrophage Activation Syndrome (MAS), the sometimes fatal complication associated with Still's Disease
Serving as official hosts for Still's Disease Awareness Day every year

Peer To Peer Fundraising: To maximize your donation, consider creating your own fundraising team on Givebutter and invite friends, family, and co-workers to support this cause!

About Still's Disease

Still’s Disease is a rare, multi-systemic (whole body) autoinflammatory condition that can vary from person to person. Because of a similar pathogenesis, broadly overlapping symptoms, and organ involvement, Still’s Disease represents a disease continuum that includes both Systemic Juvenile Idiopathic Arthritis (SJIA) and Adult-Onset Still’s Disease (AOSD). Those with onset after 16 years of age are categorized with AOSD, while those originally diagnosed with SJIA carry this diagnosis through adulthood. Onset can occur at any age, even presenting after birth.

Macrophage Activation Syndrome (MAS): A serious and sometimes life-threatening complication called Macrophage Activation Syndrome, or MAS, is also associated with this disease and awareness about it is vital to this community.

To learn more about Still's Disease causes, symptoms, diagnosis, and management, please visit www.aiarthritis.org/stillsdisease.

About AiArthritis

All of AiArthritis' work is driven by patient-identified issues and patient-infused solutions. Through advocacy, education & awareness, and research, AiArthritis has the insight and experience necessary to drive meaningful change for AiArthritis patients.

Patient-led approach

No one can identify what a patient needs most more than those personally impacted by the diseases. So, we find a variety of ways to invite patient voices 'to the table' to ensure we are addressing issues that matter most to them and to give them opportunities to be as involved in our programs as possible. In turn, our community can take pride in knowing they helped develop the programs and resources that ultimately can improve their lives and the lives of 450 million people worldwide!

Global Network philosophy

We collaborate with other organizations, health professionals, and other groups as necessary to make sure the work we do creates the most impact.

Who do we help?

We help those diagnosed, their support network, and the undiagnosed ("Mystery Patients")... because everyone is undiagnosed before they are diagnosed.

Learn more about AiArthritis at www.aiarthritis.org

Still's Disease Awareness Day 2025

Consider supporting AiArthritis as we help improve outcomes for those affected by Still's Disease!

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