Summer Spotlight on Adult Refsum Awareness
From awareness to impact: Lighting the path to a first clinical trial
Organized by Global DARE Foundation
Match Extended! All Summer Spotlight registration fees and donations made by June 20 will be matched dollar for dollar, up to 10,000 dollars, doubling your impact for Adult Refsum research, support and advocacy.
$10,000 match
Ended
Team Members
2026 Summer Spotlight on Adult Refsum Awareness
Friday, June 12 @ 8 AM EDT
Live Stream
Details to view the event are private and will be sent along with your ticket purchase.