Summer Spotlight on Adult Refsum Awareness

From awareness to impact: Lighting the path to a first clinical trial

$9,193

26% of $35,000 goal

9 Supporters

Summer Spotlight Challenge Match

Match Extended! All Summer Spotlight registration fees and donations made by June 20 will be matched dollar for dollar, up to 10,000 dollars, doubling your impact for Adult Refsum research, support and advocacy.

Match my donation!

$10,000 match

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Team Members

JUN

2026 Summer Spotlight on Adult Refsum Awareness

Friday, June 12 @ 8 AM EDT

Live Stream

Details to view the event are private and will be sent along with your ticket purchase.