Summer Spotlight on Adult Refsum Awareness

From awareness to impact: Lighting the path to a first clinical trial

$3,597

10% of $35,000 goal

4 Supporters

Summer Spotlight Challenge Match

All Summer Spotlight registration fees and donations made by June 1 will be matched dollar for dollar, up to 10,000 dollars, doubling your impact for Adult Refsum research, support and advocacy.

Match my donation!

$10,000 match

1 week 5 days remaining

Team Members

JUN

2026 Summer Spotlight on Adult Refsum Awareness

Friday, June 12 @ 8 AM EDT

Live Stream

Details to view the event are private and will be sent along with your ticket purchase.