Join us for our Second Annual Taking Steps Toward Treatment Virtual Walk during the week of Saturday, May 30th through Saturday, June 6th. Gather together in person or virtually with your family and friends to raise awareness and research funding for DYNC1H1-Related Disorders.

Let's all move for the same cause: to raise money to fund research on DYNC1H1-Related Disorders with a constant drive towards low-risk, high reward treatments. Even though we won’t be walking, running or rolling on the same course, we will all be moving towards the same goal.

WHO: Anyone can join! Register to create your own team, join an existing team, or participate as an individual - all are welcome!

HOW: Register yourself by clicking the "Donate & Tickets" button or register your team or join an existing team by clicking the "Join a Team" or "Fundraise" buttons for our second annual Taking Steps Toward Treatment Virtual Walk. During the week of the walk post photos and/or videos of your team and be sure to tag the DYNC1H1 Association (@dync1h1) and use the hashtags #stepstowardtreatment and #dync1h1walk.

WHEN: Join us virtually the week of May 30th at any time with your family, your team or on your own for the Second Annual Taking Steps Toward Treatment Walk to support the DYNC1H1 Association! Move one day or move every day!

WHAT: You will walk or roll to raise awareness and research funding for DYNC1H1-Related Disorders. The DYNC1H1 gene is on the 14th chromosome so we are encouraging participants to walk for 14 minutes, 14 blocks, or 1.4 miles one day or every day of the week!

You might also consider purchasing our Taking Steps Toward Treatment Fundraising shirt separately through our merchandise store: https://www.bonfire.com/store/dync1h1-association/

Note: All proceeds from fundraising and shirt sales will go directly to the DYNC1H1 Association. You must purchase a shirt separately before May 10th in order to be guaranteed delivery before the event.

WHERE: Any location that is convenient for you! Keep your eye out for emails from the DYNC1H1 Association with dates and times of regional group walks.

WHY: The DYNC1H1 gene codes for the protein, dynein, which is essential for many bodily functions. Individuals with mutations in the DYNC1H1 gene may experience a range of symptoms, including global developmental delays, intellectual disabilities, seizures, speech difficulties, feeding issues, sleep problems, autism, visual impairments, low muscle tone, limited mobility, or bone defects. Currently there are no treatment options for DYNC1H1-Related Disorders and we’re hoping for a future with treatment options for all. That’s why we walk.

The DYNC1H1 Association is a non-profit organization dedicated to supporting research to improve the knowledge and understanding of DYNC1H1-Related Disorders so that viable therapeutic options can be developed in order to improve the quality of life of those with DYNC1H1-Related Disorders. The Taking Steps Toward Treatment Virtual Walk supports the mission of the DYNC1H1 Association as we raise public awareness and funds for life-changing research.

Thank you for your participation and support!

Taking Steps Toward Treatment 2026 Virtual Walk

DYNC1H1 Association's Second Annual Virtual Walk

Team Leaderboard

Team Members