Thank you for supporting The Cute Syndrome Foundation’s 10th Anniversary! This campaign is now closed. To make a contribution, visit thecutesyndrome.com/donate

Join us this May as we celebrate 10 years of The Cute Syndrome Foundation!

Over the past 10 years, what started as one mother's vision to share her daughter's story and raise limited funds for research has turned into a thriving organization working in the areas of SCN8A awareness, research and family support. Through the leadership of our founder, Hillary Savoie, the efforts of our dedicated volunteers, the engagement of the SCN8A community, and the financial support of donors like you, The Cute Syndrome Foundation continues to grow and evolve in ways beyond what could have been imagined at its inception 10 years ago.

Together, our community has achieved so much!

Helping fund nearly $500,000 in scientific research grants
Supporting community events and support programs in excess of $255,000
Working with over 30 dedicated volunteers, all of whom are immediate relatives of individuals with SCN8A
Hosting 8 Annual Clinician, Researcher and Family Gatherings virtually or in-person since 2015
Supporting 457 SCN8A families in 48 countries our TCSF Family Network
Receiving 6 grants totaling over $50,000
Collaborating closely with the development of 2 cl inical trials currently enrolling the SCN8A community

We reflect back on these accomplishments with pride, but there is still work to be done - and every dollar counts. A $10 gift in honor of our 10th anniversary helps fund programs and initiatives that make a big impact in the lives of those with SCN8A. By supporting The Cute Syndrome Foundation in our mission to raise SCN8A awareness, fund research, and provide community support, your $10 contribution gives SCN8A families the gifts of joy, friendship, knowledge, and most of all, hope, today and for years to come.

Thank you for your support over the past 10 years!

Give $10 in honor of The Cute Syndrome Foundation's 10th Anniversary

The Cute Syndrome Foundation is turning 10!