EVENT INFORMATION

Come support Teegan Olson and awareness to MEF2C by joining us for the 4th annual sand volleyball tournament and gift raffle! Food and beverages will be provided. Enjoy the beautiful family friendly Orono Park in Elk River!

Sand Volleyball Tournament

$100 per team. Teams can play 4 to 5 players on the court at a time. Subs are welcome.
Minimum of 4 games for every team.
A double elimination tournament will start after the gift raffle to crown our champion.
Winning team will get a cooler full of prizes!

Raffle

Raffle tickets can be purchased on this site or in-person at the event. Cash, Venmo, PayPal accepted at the event.
$10 per raffle ticket. Buy as many as you'd like and put them towards however many gift baskets you want!
Raffle drawing will happen after pool play games and before the double elimination tournament play. Approximately between 12-1 pm CT.
We have multiple gift baskets that have been generously donated that you can win by purchasing a raffle ticket!

About Teegan

Welcome to Teegan’s page! Teegan is our incredibly happy, content, and resilient daughter who lives with MEF2C disorder. She is a joyful, go-with-the-flow child who loves the simple things in life: splashing in the water, bubbles, and music. She loves watching her two older sisters play, and lately, she’s showing a beautiful new desire to jump right in and join the fun.

This fall, Teegan is taking a huge leap forward: she’s starting kindergarten!

To help her prepare for this big school year, we are focusing heavily on a few major milestones. While Teegan is non-verbal, we are working hard on giving her new ways to communicate with the world around her. We are also practicing big physical goals every day, including navigating stairs, independent feeding, potty training, and building up her balance on different surfaces.

Teegan brings so much light into our lives, and your support directly helps us provide her with the resources and environment she needs to reach her full potential. Thank you for loving and supporting our girl, as well as others impacted by MEF2C!

Video Links about Teegan:

Original YouTube video about Teegan

2023 CBS story on Teegan

2024 video update for Teegan

About MEF2C

MEF2C Haploinsufficiency Syndrome (MCHS) is a profoundly challenging neurodevelopmental disorder that occurs when one copy of the MEF2C gene is deleted or mutated resulting in dysfunction of the MEF2C protein. First described in 2009, these variations in the MEF2C gene cause significant cognitive and physical impairments. Individuals often experience severe to profound developmental delay, low muscle tone (hypotonia), seizures, and stereotypic movements. We are fortunate to have two accomplished scientists who have been studying the gene and investigating treatment options for several years. The US MEF2C Foundation was created with the mission to accelerate research and development to find treatments and a cure for patients with MEF2C mutations.

To learn more visit our website at: https://www.usmef2cfoundation.org

2026 Volleyball & Gift Raffle MEF2C Fundraiser

Join us for the 4th annual sand volleybal tournament and gift raffle. Come support Teegan Olson and MEF2C. Food and beverages are provided! At the beautiful and family friendly Orono Park in Elk River!