Thank you for being part of Nera’s journey and for standing beside us, one day, one step, and one breath at a time.

With all our gratitude,
Nera’s family ❤️

Thank you for supporting International CCHS Day and helping us cast a light on congenital central hypoventilation syndrome.

Your generous gift means so much to our community. For a family hearing “CCHS” for the first time, it paves the path towards answers and connections. For those who have lived with CCHS for years, it is an investment in their future.

Because of people like you, the CCHS Network can continue bringing families together, advocating for improved care, educating healthcare professionals, and championing research. This work takes time and commitment, and your support helps make it possible. We are deeply grateful for your generosity and your belief in our mission.

Warmest regards,

Melinda Riccitelli, Ph.D.

CCHS Network Executive President

*You will receive a separate acknowledgment letter from the CCHS Network for your tax records. If you have not received it within 30 days of your donation, please contact us at info@cchsnetwork.org.

The Tot Family CCHS Day Campaign

Help us light the way!