It's a party!! Join us for the annual Walk With Noe 3K/5K event on June 13th (Noella's 8th birthday!) at 8:00 AM at Abilene Christian University! Whether you prefer walking or running, all are welcome to participate. We're offering virtual event tickets so you can join from anywhere. Don't miss out on this opportunity to raise awareness and spread support for those with rare diseases, like 18Q Deletion Syndrome!

Our daughter Noella, or most people know as Noe, was diagnosed with a chromosome disorder called 18q Deletion Syndrome in March of 2020. 18 Q Deletion Syndrome affects 1 in 55,000 births, and is a rare chromosomal disorder that occurs when part of chromosome 18s long arm (q) is deleted. This condition can have a highly variable phenotype, with symptoms that can range in severity and include global developmental delays, short stature, hypotonia (or poor muscle tone), hearing impairment, dysmophic features, growth hormone deficiency, malformations of hands and feet, and more. It took many doctors visits and unanswered questions before we learned that there aren't many answers out there. Instead, we have had to lean into who the Lord says Noella will be. It has been a hard journey but it has been so rewarding seeing her grow and achieve without a ceiling placed on her.

As a result of her diagnosis, we as her parents, have learned to grow and guide, protect and advocate, and most of all share her testimony to the best of our ability.

In 2021 we began our journey in fundraising & in April of 2022 we hosted our first 5K event. Our mission with Walk With Noe is to raise awareness and spread support for everyone with rare diseases, specifically with Noella's rare disease, 18Q- Syndrome. We have many exciting plans for the funds we raise such as helping special needs families in our community, families everywhere with children with chromosome disorders, as well as donating for continued research for rare diseases. Through our 2025 event, we were able to raise over $28,000 to continue to equip special needs students in the Big Country. We are thrilled for this year's 5K event and the plans we have for the coming year. We are so excited to have y'all join us as we continue to Walk with Noe!

2026 Walk With Noe 5K

Our 3rd annual 5K run/3K walk event to raise awareness and support for those with rare diseases!