Winter Ball in the Fall, we celebrate two extraordinary milestones- Lucas turning 18 and Lara turning 16. These birthdays are more than numbers; they are powerful reminders of strength, love, and the moments that matter most.

In a community where every milestone is deeply meaningful, this is not only a celebration of Lucas and Lara, but of every child and family impacted by Cockayne syndrome (CS) and Trichothiodystrophy (TTD).

It’s a chance to come together, lift one another up, and honor the resilience that defines this journey.

This event is a celebration of life, connection, and hope- and every donation helps move our mission forward. Together, we are creating a more compassionate world, advancing awareness, and supporting families who need it most.

Thank you for standing with us, for celebrating with us, and for making moments like these possible. Your support truly means everything. 💙

Winter Ball in the Fall

Join us as we Celebrate Lucas and Lara's milestone birthdays