183% of $20,000 goal
Join us as we turn "I CAN'T" into a "I CAN" MOVEment to cure VCP disease.
It's a virtual Move-A-Thon that culminates the week of June 18-24.
Here's how it works:
1. Each team member picks an individual movement challenge: Walk, Run, Bike, Swim, Finger-Raises, Wheelchair-Miles...anything that gets you moving.
2. "Sign-Up" to participate by clicking the button above to create your personal page and story. (You can create your own team by clicking sign-up next to "Team Leaderboard" or join someone's team by clicking sign-up next to "Team Member").
3. Record yourself with your cell phone doing your challenge and make sure to share with the world!
4. Like the ALS Ice Bucket challenge, share your I CAN DO challenge across Facebook, LinkedIn, Instagram, and e-mail!
5. Individuals that raise over $250 will receive an athletic shirt to commemorate the event!
We have a donor that has offered to match all donations up to $10,000!
Let's invite our family and friends to join our team as we celebrate what we CAN DO! We all have challenges, especially when facing a rare disease and rather than focus on what we can't do, we want to celebrate what we can do!
Most people still don't understand the burden of VCP disease and this is a great chance to highlight your challenges and show the world what you CAN DO! This can raise awareness and donations as we move towards our goal of a cure for VCP disease.
Here's some examples of movement challenges:
For those with a disability:
-"I can't run a 5K, but I can walk 500 steps this week."
-"I can't walk a mile, but I can walk three laps in the pool."
-"I can't lift a 4 lb weight, but I can get 10 spoonfuls of cereal to my mouth."
-"I can't run, but I can bike a mile."
For those without a disability:
-"I can't imagine not being able to walk, but I can raise awareness by walking for a cure."
-"I can't imagine what it is like living with VCP disease, but I can bike 20 miles for a cure."
Donate or sign-up to participate today.
About Our Organization:
Cure VCP Disease is a patient advocacy organization dedicated to driving the development of a cure for valosin-containing protein associated multisystem proteinopathy. It also known as IBMPFD (Inclusion Body Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal Dementia), but we call it VCP disease. It is hereditary and adult-onset, meaning that symptoms of the genetic mutation are not seen until a person is in adulthood. VCP disease can affect any combination of a patients’ muscles, bones and brain and can cause degenerative diseases including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie Tooth. This devastating disease runs in families, and it is our mission to stop it.