There are many tasks that are being added to my "I CAN'T LIST." I can't step down a stair or curb without railings or help. I can't get up from the floor without crawling to something sturdy and pulling up with my arms and upper body. I can't lift my legs high enough to get my pants on and sometimes need help. There are moments I grieve for the daily losses that are going on with my body. However, I choose to focus on my "I CAN LIST." I CAN thank God for holding me close always! I CAN enjoy my family and friends. I CAN keep trying to support finding a cure for me and others through participating in studies and donating blood, urine, and muscle for research. I CAN donate and raise funds. I CAN HAVE HOPE!
There is a lot I CAN do but I CAN'T do it alone. I am inviting you to join my team "Cammie's Team Hope" in anyway you are able. Maybe it is posting a link to this fundraiser. Maybe it's joining me on a walk or doing something virtually yourself to raise awareness. Maybe it's a donation to CureVCP Disease. Maybe it's supporting me through prayers. I CAN'T do this alone but I CAN keeping pushing ahead with your love and support in whatever form that is.
*A donor is matching all donations up to $10,000! For every $1 donated, Cure VCP Disease will get $2.
About CureVCP Disease Organization:
Cure VCP
Disease is a patient advocacy organization dedicated to driving the
development of a cure for valosin-containing protein associated
multisystem proteinopathy. It also known as IBMPFD (Inclusion Body
Myopathy, Early Onset Paget’s Disease of Bone and Frontotemporal
Dementia), but we call it VCP disease. It is hereditary and adult-onset,
meaning that symptoms of the genetic mutation are not seen until a
person is in adulthood. VCP disease can affect any combination of a
patients’ muscles, bones and brain and can cause degenerative diseases
including ALS, frontotemporal dementia, Parkinson’s, and Charcot-Marie
Tooth. This devastating disease runs in families, and it is our mission
to stop it.
