DARE Step Challenge / Fundraiser

Help Raise $15,000 towards Gene Therapy research for Refsum Disease

$5,106 by 37 people

$15,000

Global DARE Foundation

Team Members

Kristie

$1,942 / 26 donors

Susan

$1,375 / 5 donors

John

$175 / 2 donors

Kate

$275 / 1 donor

Marlena

$50 / 1 donor

Kathryn

$39 / 1 donor

Sára

$0 / 0 donors

Event

Event Details

Please note: tickets are required to attend this event.

DARE Step Challenge

Get in shape before the holidays and support a great cause at the same time. Global DARE Foundation is holding a 6-week step challenge that goes from October 5th to November 15th. Any exercise can be converted to steps for this challenge. Prizes will be awarded to the top 3 steppers at each step level. Participants donating or fundraising at least $200 will receive a free event t-shirt.

Date & Time

Mon, October 5th 2020
2:02 PM EDT -
Sun, November 15th 2020
2:02 PM EST

Add to Calendar 2020-10-05 14:02:07 2020-11-15 14:02:29 America/New_York DARE Step Challenge Get in shape before the holidays and support a great cause at the same time. Global DARE Foundation is holding a 6-week step challenge that goes from October 5th to November 15th. Any exercise can be converted to steps for this challenge. Prizes will be awarded to the top 3 steppers at each step level. Participants donating or fundraising at least $200 will receive a free event t-shirt.

Location

This event will be hosted digitally.

Details to view the event are private and will be provided upon ticket purchase.

Story

Global DARE Foundation's mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease.  DARE stands for Defeat Adult Refsum Everywhere. We DARE to believe there is a cure for Adult Refsum Disease.

Adult Refsum disease is a genetic disorder that impacts the metabolism of phytanic acid which is found in food.  The disease significantly impact quality of life of patients by causing vision loss, hearing loss, loss of smell, mobility issues and more.  People with Refsum Disease must also go on a very strict diet to slow progression of current symptoms and avoid life threatening symptoms.   A better therapy is needed!

As seen in Global DARE Foundation's recent webinar, Refsum disease is a strong candidate for Gene Therapy.  We are running this fundraiser to raise the necessary funds to start the pre-clinical work for Gene Therapy.   

Please support us in our mission to find a cure!

 

Supporters

Kristie DeMarco received a new donation from Yvette

23 hours ago

$39

Looking forward to supporting the cause and doing a step challenge with everyone!

Andrew Vasili made a donation

2 days ago

$1,250

Good luck with reaching your target!

Kristie DeMarco received a new donation from Anna Krupicz

2 days ago

$39

Kristie DeMarco received a new donation from Wendy

3 days ago

$125

I'll be walking with you all the way, Kristie!

Kristie DeMarco received a new donation from Theresa Cossaboon

3 days ago

$25

Kristie DeMarco received a new donation from Jenna Conley

4 days ago

$50

Susan Kuranoff received a new donation from Roland Glauser

5 days ago

$50

Susan Kuranoff received a new donation from In memory of Di Hartman

5 days ago

$1,000

Kristie DeMarco received a new donation from Patrick Ortman

5 days ago

$39

Susan Kuranoff received a new donation from Anonymous

5 days ago

$200

Kristie DeMarco received a new donation from Catherine Rush

6 days ago

$39

Kristie DeMarco received a new donation from The Chezem family

6 days ago

$50

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