Why Are We Here?

World Lichen Sclerosus Awareness Day is a day to bring attention to the issue. Attention to a condition that affects as many as 1 in 70 vulva owners worldwide. Despite this, it is still considered “rare”.

It takes an average of 5 to 15 years for a diagnosis due to misdiagnosis or going undiagnosed. This is dangerous because Lichen Sclerosus is progressive and wreaks havoc on people’s bodies, minds, relationships, and souls. Learn more about LS on our World Lichen Sclerosus Awareness Day page.

Lichen Sclerosus Support Network’s dedication to shining a light on this condition has just begun. As we celebrate our third World Lichen Sclerosus Awareness Day as an organization, we are here to provide a safe and comforting community to all affected.

This year, LSSN is focusing its live content around partners, caregivers, and disclosure. For our first live event of the year, we are honored to bring back a fan favorite, Dr. Jill Krapf.

Dr. Krapf is a board-certified Obstetrician-Gynecologist specializing in female sexual pain disorders and Director of Jill Krapf MD, The Center for Vulvovaginal Disorders Florida in Tampa, Florida. She also sits on LSSN's Medical Advisory Board.

Dr. Krapf is also an educator and has a large following on Instagram, where she provides insights into vulvar health. She is also an author and researcher. She co-wrote the trade book When Sex Hurts: Understand and Healing Pelvic Pain.

What can you expect?

08:00 - 9:00 PM EST / 5:00 - 6:00 PM PST

Dr. Krapf will educate us on lichen sclerosus and sexual health. She will talk about how LS affects sexual health and what we can do to prevent and reverse the damage. We will open the floor for questions if time permits.

If you're looking for actionable steps to keep your vulva healthy, you do not want to miss this event.

The replay will be available directly after on this page and on our YouTube live events playlist.

Can't wait and want resources now, check these resources!

How can you help?

While this event and resources are free, we rely on donors to help us continue providing quality education and support. If you feel inspired or found this event helpful, please donate. Every bit helps us continue teaching and supporting people through our website, blog, videos, podcast, virtual meetups, and private support groups. It also funds our provider directory and allows us to create more events like this.

Scroll up and click the “Donate” button to make your donation now.

OR

If you’re in the market for quality vulva products, purchase from our World Lichen Sclerosus Awareness Day partner SweetSpot Labs.

Sweet Spot Labs is on a mission to elevate vulvar skincare and break the stigma around vulvas. For the third year in a row, they will donate all online proceeds from shop.sweetspotlabs.com on January 17, 2024, to LSSN in honor of World Lichen Sclerosus Awareness Day in their commitment to helping people with vulvas become educated about their bodies.

As part of this partnership, with every SweetSpot Labs Rescue Balm purchased, you will receive the links to download LSSN's Check Your Vulva Bundle (a $25 value).

Why would I need these products?

As you'll learn in Dr. Krapf's presentation, it's important to keep our vulvas protected. SweetSpot Labs' Rescue Balm has rich ingredients that protect from moisture loss and leave skin feeling soothed, comfortable, and nourished. It's water-free and concentrated with clean, 92% naturally-derived actives. Rescue Balm locks in moisture to relieve and protect dry, itchy skin. It's also safe for around the anus.

It is crucial for people with vulvas, especially if they have a vulvar condition such as LS, to not only care for their vulvas but check them at least once a month. We understand there are many reasons this can bring fear, shame, and anxiety. The Check Your Vulva Bundle strives to make things easier.

The Check Your Vulva Bundle includes the following LSSN downloadables:

Vulva Check Guide PDF (Value $5 USD/7$ CAD)
Gynecological Vulva Check Meditation (Value $10 USD/14$ CAD)
Pelvic Floor Vulva Check Meditation (Value $10 USD/14$ CAD)

We want to give you the tools you need to make vulva checks and caring for your vulva pleasurable and a form of self-care. As a thank you for supporting us, you get these three downloads FREE with the purchase of SweetSpotLabs Rescue Balm!

Get your SweetSpot Labs Rescue Balm and set up your cart now. Then check out on January 17, so you not only help yourself but others with LS, too.

Thank you!

Scratching the Surface: Unraveling Sexual Health with Lichen Sclerosus

Awareness, Community, Education, Hope